A Pained Life: What Price Would You Pay for a Cure?

By Carol Levy, PNN Columnist

I recently had my deep brain stimulator removed. The implant made my trigeminal neuralgia pain much worse. As much as I hated the implant for the entire 7 months I had it, I knew I had to give it a try. I was obsessed with finding a cure.

I was looking for something mindless to watch on TV that would help get my mind off the failed implant. I saw a listing for a movie called “PAINLESS.” The name was interesting and so was the plot, about a man unable to feel physical pain:

“Born with a rare condition that leaves him alienated… a man becomes obsessed with finding a cure. A need for normalcy leads him down a dark path, and he must decide if finding a cure is worth paying the price for it.”

For many of us with chronic pain, that is our story too. I was also desperate for a cure.

Because of my very long and involved medical history, my doctor told me I was pretty much out of options. The only choices left were the implant or two risky surgeries.

Now those are the only options left. One surgery is dangerous and with possible complications too great to even consider. The other is essentially a mini-lobotomy that would leave me cognitively impaired.

“You would still have the pain. You just won’t care that you do,” the doctor explained.

Because of my pain, I am about 80% housebound. I have been for decades. The movie character knows this reality of alienation, as I do. Work helps you create a family and network if you don’t have one. No work and staying home most of the time equals alienated and alone.

Like most people, I want to have a “normal” life.  Sometimes the idea of going to the other side, and being “painless” seems like a good thing. And yet, people who can’t feel physical pain have to be even more careful then we do.

We know what triggers our pain and try to avoid those things. Someone who can’t feel any pain has to be on constant lookout that they don’t get injured in any way. They could cut themselves with a knife and not know it. They could get burned touching a hot stove because they can’t feel it.

We are two sides of the same coin. We want to get rid of the pain. The movie character actually longs for the sensation. He even has surgery without anesthesia.

Ultimately, we all have to decide how far will we go in our quest to find a cure. What price are you willing to pay?

Carol Jay Levy has lived with trigeminal neuralgia, a chronic facial pain disorder, for over 30 years. She is the author of “A Pained Life, A Chronic Pain Journey.”  Carol is the moderator of the Facebook support group “Women in Pain Awareness.”

A Tribute to My Father and the Greatest Generation

By Dr. Lynn Webster, PNN Columnist

When I was a little boy, we planted roses, geraniums, chrysanthemums and tulips at the graveside of my grandparents every Memorial Day.

In the beginning, we only had my maternal grandfather’s and paternal grandmother’s graves to decorate. Since they were about 100 miles apart, decorating their graves was a full-day event. It was a ritual that most of the immediate family participated in. Over the years, the number of graves grew and the number of decorators dwindled. 

People have used flowers to decorate graves for thousands of years. It is not clear when or why the practice first started. For my family, adorning graves with flowers was a way to remember and honor the people we loved and missed.

This past Memorial Day weekend, we visited and decorated their graves yet again, just as millions of Americans do to recognize the men and women who have served our country in the military. 

My father, Raymond L. Webster, risked his life serving in the South Pacific during World War II. He is one of those people we recognize on Memorial Day -- and, hopefully, every day -- for his heroism as a Marine, father and grandfather.

RAYMOND L. WEBSTER

We frequently hear that members of the military sacrifice their lives for their country, but that is not the primary reason my father risked his life.

My father was part of what has become known as the “Greatest Generation.” Of course, he was a proud American, but he often said he was willing to give his life for his buddies. He fought for his "brothers," just as the soldiers depicted in the 2001 film, "Band of Brothers." Patriotism was a background element.

My dad did not always know the reasons for his military missions. He spent his time in the Pacific Theater of Operations as part of the military police, serving in the Bismarck Archipelago, Solomon Islands, Guam and Marianas Islands campaigns.

At War with a Pandemic

I'm proud of my dad's commitment to his fellow warriors and the country. He's part of the great American history we must always remember.

Today, we battle a new enemy that is no less difficult than prior foes. We ultimately may win the war against the coronavirus, but we are not meeting each battle with the same resolve that members of the Greatest Generation did. Lack of a national plan and widespread disregard of our scientists’ recommendations suggest we are not meeting this threat the same way we arose to the occasion in previous wars.

Maybe it is because we don’t have the same willingness to sacrifice for our fellow citizens as those who came before us did. I don't know for certain.

But the coronavirus is a formidable foe. It has already caused more American deaths than we suffered in the Vietnam, Afghanistan, and Iraq wars combined.

The Greatest Generation modeled self-sacrifice, and doing the right things for the right reasons. We have the freedoms we enjoy today because of their selfless actions.

We can't know for certain what members of the Greatest Generation would say about our response to the pandemic, because few of them are here to tell us. However, I am certain they would say that we will get through this if we care enough about each other.

We can come out of this as a better, stronger nation. Putting the welfare of others ahead of our own needs worked before. Why wouldn't it work again?

Lynn R. Webster, MD, is a vice president of scientific affairs for PRA Health Sciences and consults with the pharmaceutical industry. He is author of the award-winning book, “The Painful Truth,” and co-producer of the documentary, “It Hurts Until You Die.” You can find Lynn on Twitter: @LynnRWebsterMD.

Nerivio: What’s All the Buzz About?

By Mia Maysack, PNN Columnist

If you have migraines and are open to more holistic approaches to treating them, I’d like to share my experience with Nerivio. It’s the first smartphone-controlled neuromodulation device for the treatment of migraine, with or without aura. I was provided one of the devices, which is worn on the arm, at no cost by the manufacturer, Theranica Bio-Electronics.

Nerivio requires a prescription from a doctor. I was able to be seen via telemedicine through Cove for my appointment, which was convenient. A script was written for 12 treatments, which are thought to be most beneficial within the first 30 minutes of experiencing aura or the onset of pain.

Given that my head hurts 24/7/365, I was hesitant to even try Nerivio, but ultimately decided it was worthwhile due to the low risk of side effects. I've tried different types of neuromodulation devices before, without success, and went into this with an open mind and minimal expectations.

Nerivio didn't take any of my discomfort away, but it did cultivate a decent enough distraction. Despite my blaring head pain, I love loud music. I realize that could seem odd, but I figure since it hurts anyway, turn it up! Anything to switch up the frequency of this migraine that's stuck on repeat. 

I view Nerivio similarly. You have to chill out for the treatments, which are 45 minutes in length. Though it is possible to go about daily activities during treatments, I found it more comfortable not to. I'd take deep breaths and visualize the armband just like music, disrupting the head pain and transmitting restorative waves.   

Much like the beloved 12" subwoofer in Ophelia (my car), I controlled the volume, using my smartphone to dictate the intensity of Nerivio.

When it’s on, Nerivio delivers small electric impulses into the upper arm that disrupt pain signals in the brain. I first compared the feeling of neuromodulation to that of a tingle or itch, but after becoming more familiar, I'd label it as vibrational. It doesn't hurt, and the sensation is a welcome change of pace for anyone experiencing head pain 

It's important to remember there is a weak current of electricity, so fingers shouldn't be directly placed on the device when it's on, nor should it be used in any place other than your arm. 

The device costs about $100. That can be a significant amount of money, especially for those of us unable to maintain any sense of normalcy regarding employment or income. But I’ve paid out of pocket far more than that, regularly, for co-pays and uncovered treatments, not to mention pills that demanded Benjamin Franklin’s face for not even a week’s worth of treatment.   

What I appreciate about Nerivio is that it’s something I can do on my own. I altered the arms I used it on and always incorporated relaxation with my experiences to whatever extent I could.  It worked nicely in conjunction with mindfulness breaks, as well as first thing upon waking up or last thing before bed. 

IMAGES COURTESY OF THERANICA

It’s also relieving to literally be holding the “power” in the palm of my hands. If there’s a need to halt a session, there is a pause button. Although I didn’t get around to utilizing it, Nerivio also has a feature that assists in promoting guided imagery and meditation as a further enhancement.   

For each treatment, all that’s necessary is to hit the power button on the armband and ensure it has synced up to your device. Within the first few moments when starting, a questionnaire pops up on the screen asking how you’re feeling. This acts similarly to a virtual diary to track symptoms and hopefully improvement. This step isn’t necessary, although never a bad idea to monitor or check in as to where you’re at.

All in all, I’d have to say if you’re curious enough and able to, go ahead and give Nerivio a try.  I believe it could be beneficial for other migraine conditions not as complex as mine.  

I haven’t been paid or endorsed at all for this review and offer these words solely as a resource for those who are considering it.  Feel free to follow up with questions, as I’m honored to help navigate the Nerivio process with you in any way I am able.

Mia Maysack lives with chronic migraine, cluster headache and fibromyalgia. Mia is the founder of Keepin’ Our Heads Up, a Facebook advocacy and support group, and Peace & Love, a wellness and life coaching practice for the chronically ill.

Poor Data and Politics Plague U.S. Response to Pandemic

By Roger Chriss, PNN Columnist

The United States’ response to Covid-19 is now more focused on partisan politics and reopening the economy than it is on public health. Before the end of this holiday weekend, the nation will likely surpass more than 100,000 coronavirus deaths – nearly three times more than any other country.

Back when Covid-19 was still the “novel” coronavirus, there was cause for optimism. In late January, Dr. Ashish Jha, Professor of Global Health at Harvard University,  wrote in Health Affairs that "our health care system has capacity and expertise to handle a meaningfully larger caseload if necessary.”

Unfortunately, this is not what happened. Instead, Dr. David Shlaes writes in the American Council on Science and Health that the federal Department of Health and Human Services was "completely dysfunctional” and that the CDC guidelines for dealing with COVID-19 “defy logic and science.”

The article aptly carried this headline: “The Keystone Cops Vs. Coronavirus.”

Screwy Data

The state response has also been inept in places. Georgia was among the first states to reopen, based on what appeared to be a strong downward trend in new cases. But the Atlanta Journal Constitution reported that Georgia public health officials were using a misleading chart that appeared to show infections declining when they had actually only plateaued. There were also serious lags in data collection and processing.

In Florida, state scientist Rebekah Jones was apparently fired for refusing to manipulate data, according to USA Today. Jones reportedly refused to "manually change data to drum up support for the plan to reopen."

Virginia is also suspected of manipulating its Covid-19 data. The Atlantic reports that Virginia combined the results from viral and antibody tests into a single statistic, making it appear the state had a “more robust infrastructure for tracking and containing the coronavirus than its actually does.”

Other states are also massaging their data. Texas and Vermont have been combining the viral test results that show an active infection with antibody tests that show a past infection. The results may look impressive, but experts say they do not give an accurate picture of how the virus is spreading.

The Atlantic reports the CDC is also combining the data, “distorting several important metrics and providing the country with an inaccurate picture of the state of the pandemic.”

“It is terrible. It messes up everything,” Dr. Jha told The Atlantic.   

‘Archaic’ Tracking System

Another reason the CDC’s coronavirus data is bad, according to Business Insider, is that it has to depend on states to collect and submit their findings. CDC Director Robert Redfield described his agency’s tracking system as “archaic” at a Senate hearing.

Some of the CDC’s coronavirus data is weeks old, according to CNN, “causing senior leaders at the agency to believe the current death count in the U.S. could be significantly higher."

Worse, the federal and state data do not match up. The Atlantic found that in 22 states, the CDC’s reported number of tests diverges from the number reported by the states by more than 10 percent. In 13 states, it diverges by more than 25 percent. In some cases, the CDC’s tallies “are much higher than what states are reporting; in others, much lower."

Poor data and the resulting policies may already be having consequences. Texas reopened quickly and has since seen a “massive jump” in new cases, particularly in the state’s panhandle. Similarly, cities in the Midwest are experiencing spikes.

The Hill reports that almost 80 percent of Americans live in counties where the virus is spreading widely, according to an analysis by the Brookings Institution.

The U.S. now risks losing the ground it gained in late March and April. May has seen little if any progress, and a second wave of the coronavirus is a virtual certainty in the fall.

We need timely, accurate data about the pandemic and a willingness to accept the data and respond quickly and effectively. Otherwise we’re just feeding the virus.

Roger Chriss lives with Ehlers Danlos syndrome and is a proud member of the Ehlers-Danlos Society. Roger is a technical consultant in Washington state, where he specializes in mathematics and research. 

Why We Need Connections

By Dr. Lynn Webster, PNN Columnist

On a recent "Hidden Brain" podcast, Shankar Vedantam interviewed former U.S. Surgeon General Dr. Vivek Murthy about the need for human connection.

Dr. Murthy is promoting his book, “Together: The Healing Power of Human Connection in a Sometimes Lonely World,” which is especially timely given the fact that so many people are currently experiencing social isolation.

I encourage everyone to listen to the podcast and, perhaps, to buy the book. Murthy comes across as a sensitive, intelligent physician who offers an empathetic perspective.

To state the obvious, the COVID-19 pandemic has created distance between most of us and isolation for many of us. To some degree, it has traumatized nearly all of us.

It is important to recognize many people will be seeking ways to heal from the experience. A desire to feel connected is primordial. To have a sense of belonging is on our hierarchy of basic needs. It is also important to healing.

Rachel’s Story

I want to share a short, true story to illustrate the power that connection plays in wellness and healing. 

Debra Hobbins was a nurse practitioner who worked with me in our clinic. She had a unique capacity to connect with patients and make them feel they were important. It was genuine; she was a compassionate and empathetic clinician. 

Debra and I had a patient, whom I will call "Rachel," who had developed an opioid addiction. After several years of fighting the addiction, Rachel tried to get help, but the barriers and rules created by treatment centers and the government prevented Rachel from seeking the care she needed. One day, Rachel found her way to our clinic, where Debra became her primary provider.

Since we were treating Rachel with Suboxone for an opioid addiction, I was included in Rachel’s treatment team. (This happened at a time before nurse practitioners could prescribe Suboxone for addiction.) However, it was Debra who took the lead role in offering a powerful sense of caring and connection for Rachel.

Debra was uniquely qualified to understand Rachel's pain, because she had lost her son to a heroin overdose many years earlier. She knew what Rachel needed to begin healing. Debra gave her what no one had given her before: understanding, compassion and nonjudgmental, unconditional love.

The connection Debra offered Rachel was essential to Rachel’s healing. But there are all sorts of support, and people in pain need various types of help at different times.

Religion and Spirituality Can Help Us Heal

Sometimes, people need help that no human can provide, and they seek healing and comfort from the divine or through spiritual practices.

Researchers are especially interested in how effective religion and spirituality are in helping people deal with physical or emotional pain. Time and again, studies have shown a correlation between a religious or spiritual orientation and improvements in pain or health.

In a 2011 study of 60 depressed patients, researchers found that “hopelessness and suicidal intent correlated negatively with the level of religiosity." In other words, people in pain who are religious or spiritual tend to feel better than those without belief. They are more likely to have "better psychological well-being."

Seeking Connections During the Pandemic

For many of us, our sense of isolation has been heightened by the pandemic. Some people who typically feel connected to others may have temporarily lost the ability to participate in activities that provided them with a sense of belonging, such as going to church or the gym.

There are alternatives, such as using Zoom to visit with friends and family, but all forms of connection are not equal. Some options work better for some people than for others. Those who are lucky enough to be able to participate in video calls may find them inadequate. According to Psychology Today, the technology may leave some people feeling exhausted and depleted rather than satisfied.

Tapping into their faith or joining video conferences may help some people feel connected. But for others, that may barely scratch the surface of their loneliness.

As Murthy points out, a "dark thread of loneliness" can cause physical health problems, including drug abuse. Physical distancing may keep many of us safe from the coronavirus—but without human connections, the richness of life can be elusive.

Lynn R. Webster, MD, is a vice president of scientific affairs for PRA Health Sciences and consults with the pharmaceutical industry. He is author of the award-winning book, “The Painful Truth,” and co-producer of the documentary, “It Hurts Until You Die.” You can find Lynn on Twitter: @LynnRWebsterMD.

9 Best Practices for Telehealth

By Barby Ingle, PNN Columnist

Telehealth can make life easier for chronic pain patients. We spend so much of our time and energy traveling to and from provider appointments, paying for gas or public transportation, and then sitting in waiting rooms for our appointments to begin.

Being able to talk with providers over the phone or online without leaving home is not only more convenient, the “virtual” visits greatly reduce the risk of exposure to COVID-19 and other communicable diseases – an important point for patients with compromised immune systems.

If you’re new to telehealth or wondering how to make use of it, here are nine best practices I’ve learned.

1. Be strategic in your appointment time slot. It is best if you can schedule it earlier in the day because providers are often less rushed and can spend more time with you.

2. Before your appointment, you should take time to assess your needs. Should a loved one or caregiver participate in the call? They could have some significant information about your health or have a question you didn’t think of.

3. If your appointment is online, your provider will send you a login link or they will call you through their online platform. Some doctors work with telehealth companies that provide their patients with health monitoring tools, such as blood pressure checks. Practice using the technology before your appointment.

4. If you will be on camera with your provider, do a test with a family member or friend. Make sure that you are in a well-lit, quiet location, and there is nothing in the background that is distracting or inappropriate.

5. Telehealth may seem a little less formal, but remember to stay focused on what your needs are, just as you would when visiting a doctor in their office.

6. Patients may benefit if they have access to their online patient portal information. I utilize this feature often with my primary care provider and his staff. During my last appointment, he said that he prefers that I text him directly if the situation is more urgent.

7. I have a thick case file and keep my health records organized. You should too. Make sure to keep track of your telehealth appointments, billing and insurance payments, just as you do with in-person visits.

8. If you struggle with new technology or this type of communication, be sure to let the provider know. Maybe your internet is not fast enough, your wi-fi not strong enough, or you don’t have the right app on your phone. Ask for help or other options.

9. Just in case the technology fails, have a backup plan. One of my providers was a little late and called me two minutes after our scheduled time. He apologized and said his last appointment went longer than expected. In those two minutes I realized I didn’t know what to do. Was I supposed to call him? Was he going to call me? Did he give me a link? Having that information on hand will save you some stress in an already stressful moment.

Not all healthcare needs can be addressed via telehealth. Some prescriptions, such as opioids, may require a visit to the office. So will some medical exams. A combination of in-person, phone and online appointments may be best for you.

Barby Ingle lives with reflex sympathetic dystrophy (RSD), migralepsy and endometriosis. Barby is a chronic pain educator, patient advocate, and president of the International Pain Foundation. She is also a motivational speaker and best-selling author on pain topics. More information about Barby can be found at her website.  

The Importance of Slowing the Pandemic

By Roger Chriss, PNN Columnist

The U.S. economy is starting to reopen amid the coronavirus pandemic. It’s still early, but Health and Human Service Secretary Alex Azar told CNN’s “State of the Nation” on Sunday that there has not been an increase in new infections in states that have reopened.

“We are seeing that in places that are opening, we’re not seeing this spike in cases,” Azar said. “We still see spikes in some areas that are, in fact, closed.”

However, over the weekend Texas reported its highest single-day increase in new cases, and Wisconsin saw a record number of new infections.

The coronavirus has become entrenched. CDC Director Dr. Robert Redfield tweeted Friday that all 12 forecasting models used by the agency forecast over 100,000 deaths by month’s end.

The Institute for Health Metrics and Evaluation predicts over 147,000 American will die by early August. Infectious-disease researchers estimate over a quarter million fatalities by year’s end.

Dr. Michael Osterholm, director of the Center for Infectious Disease Research and Policy at the University of Minnesota, told USA Today that “this damn virus is going to keep going until it infects everybody it possibly can.”

Epidemiologist Dr. Johan Giesecke wrote in The Lancet  that "measures to flatten the curve might have an effect, but a lockdown only pushes the severe cases into the future — it will not prevent them."

CDC tracks 12 different forecasting models of possible #COVID19 deaths in the US. As of May 11, all forecast an increase in deaths in the coming weeks and a cumulative total exceeding 100,000 by June 1. See national & state forecasts: https://t.co/PI1AtLCCmt pic.twitter.com/iylBnom5U0

— Dr. Robert R. Redfield (@CDCDirector) May 15, 2020

But even if everyone will eventually be infected, there is little sense in rushing headlong into that future.

Covid-19 is deadly and damaging. The mortality rate of Covid-19 is still uncertain, but an estimate of 1% is common. So a rush toward infecting most people in the U.S. means at least 200 million sick people, the number associated with herd immunity. This means two million deaths, possibly more if the healthcare system is overwhelmed or the virus is more virulent than now believed.

Even if the mortality rate is much lower, there is still considerable disease burden. The Guardian reports that about 1 in 20 people with Covid-19 have a chronic course of illness that lasts for months.

And Covid-19 is more than a respiratory virus impacting only vulnerable adults. CNN reports that it is also causing blood clots and multiple organ failure in young adults, and multi-system inflammatory syndrome in children.  

All of this will cost a lot. The Kaiser Family Foundation estimates that the average cost of COVID-19 treatment for someone with employer insurance is $9,763. Someone whose treatment has complications may see bills about double that. Hospitals are spending between $6,000 and $8,000 a day on coronavirus patients, meaning an extended hospitalization could cost well over $100,000.  

Slowing the pandemic will buy time to better understand the virus and develop more effective responses to make the future less risky and costly. We already have tools and technologies to make that happen.

First and foremost, social distancing. A new study in Health Affairs reports on the success of strong social distancing measures. Based an analysis from April, government-imposed social distancing reduced the daily infection rate by 5.4% after 1-5 days, 6.8% after 6-10 days, 8.2% after 11-15 days, and 9.1% after 16-20 days. That translates to millions of fewer cases of Covid-19.

Second, hygiene. Yale University researchers looked at the impact of face masks in mitigating the spread of Covid-19. They conservatively estimate the value of each additional mask worn by the public at $3,000 to $6,000.

Third, systematic tracing and tracking of cases. This includes state and federal health measures to identify new cases, track chains of transmission, and alert people who have potentially been exposed. Washington state will require restaurants that reopen to keep customer logs, a simple measure that may help slow the spread of Covid-19.

Last, planning. Society needs to function but cannot just go back to pre-pandemic ways. Instead, staggered work schedules, flextime and telework can lower transmission. Some cities are closing streets to vehicles to make more space for people, who can then dine and shop. Schools are looking at part-time programs and adaptive scheduling to promote safer educational environments. And medical facilities are offering more telehealth and remote services.

There are many ways to slow the spread of Covid-19 and a myriad of benefits to doing so. Society does not need to be sacrificed in the process. Instead, we can adapt. The virus adapted to people, but people can be clever and cooperative enough to outcompete it.

Roger Chriss lives with Ehlers Danlos syndrome and is a proud member of the Ehlers-Danlos Society. Roger is a technical consultant in Washington state, where he specializes in mathematics and research. 

Where Are You Most Likely to Contract COVID-19?

By Dr. Lynn Webster, PNN Columnist

As the country reopens, some people may be at greater risk of contracting COVID-19 due to a lack of understanding about how the virus is transmitted. Having too little information (or too much misinformation) about how the coronavirus spreads and how we can protect ourselves can cause people to feel a false sense of security and unnecessarily place themselves in harm's way.

It may also lead to poor outcomes for those who fail to seek medical care for heart attacks, strokes and other urgent conditions. They may believe that going to a hospital where COVID-19 patients are present is dangerous, but their exaggerated fear may cost them their lives.

While panic is counterproductive, we do need to be realistic. Recent projections suggest the United States will see more than 140,000 deaths before September. If there is a second wave of the virus this fall, the number of deaths by Christmas may be staggering.

How We Transmit the Coronavirus

Initially, COVID-19 was thought to target elderly people with co-morbid health conditions. But many younger, healthy people have also died. Children with Pediatric Multi-System Inflammatory Syndrome and women who have miscarried because of a SARS-CoV-2 infection are awakening scientists to new horrors and challenges.

Erin Bromage, PhD, an Associate Professor of Biology at the University of Massachusetts Dartmouth, recently posted one of the most informative articles that I have read on how the virus is transmitted. It is worth reading.

We know that transmission most commonly occurs in dense gatherings and at home. Bromage explains that inhaling 1,000 viral particles can infect you with COVID-19 -- and that a single sneeze spews as many as 200,000,000 virus particles, moving at a speed of 200 miles per hour.  

Engaging in a conversation with a carrier can expose you to hundreds of thousands of virus particles with each exhalation. A single breath can expel 100 or so virus particles. Assuming we each exhale 16 times per minute, it takes less than one minute of conversation to exceed the 1,000 particles necessary to cause an infection.

The droplets released via a conversation can be aerosolized into a fine spray that remains suspended in the air for several minutes. That means people standing more than 6 feet away who walk through the virus mist within 5 to 10 minutes after the carrier has left the scene are also at risk of becoming infected.

Bathrooms, according to Bromage, are cesspools of transmissible virus particles. Even flushing a toilet can aerosolize droplets. 

Restaurants are common sites of transmission. Airflow from heating and air conditioning systems circulates viral particles through closed environments. As an asymptomatic carrier enjoys dinner, viral particles from breathing travel through the ventilation system of the restaurant to reach far beyond 6 feet.

If there are ceiling or standing fans, it is even easier for an infected person who is only talking to seed the air with viral particles from a distance. If the carrier stays at the restaurant for an hour or more, there could be enough virus particles circulating through the dining area to infect people at tables throughout a small restaurant.

Workplaces, choirs, church services, weddings, funerals, birthdays, and indoor sports gather people in close proximity and are responsible for a large portion of transmissions. Bromage points out that these venues, along with public transportation, are responsible for 90 percent of all transmissions. 

Calculating the Risk of Infection

We can calculate the risk of acquiring the contagion. As Bromage states, dose and time determine the risk: the amount of virus a person is exposed to and the length of time they are exposed to that dose. 

Runners or bicyclists may spew large amounts of virus as they breathe heavily. But, because they are outdoors, the exhaled particles can be quickly diluted in the air if people are separated by several feet. Runners' and bicyclists' diluted virus particles are less likely to pose a threat because of the limited amount of time people are exposed to them.

People who are less mobile, like the elderly or many people with advanced illness, are generally indoors, either at home or in hospitals. These people are at the greatest risk when they are exposed due to the dose and time factors. Small doses over long intervals of exposure in a home, nursing home, or hospital greatly increase the chances of contracting the disease.

As our communities adapt to the changing needs of society, we need to understand how this deadly virus can penetrate our barriers. Knowledge about how the virus spreads can help minimize our risk of contracting and spreading COVID-19. This may require us to rethink the wisdom of many of our traditions for the next year or more.

Lynn R. Webster, MD, is a vice president of scientific affairs for PRA Health Sciences and consults with the pharmaceutical industry. He is author of the award-winning book, “The Painful Truth,” and co-producer of the documentary, “It Hurts Until You Die.” You can find Lynn on Twitter: @LynnRWebsterMD.

The opinions expressed in this column are those of the author alone and do not inherently reflect the views, opinions and/or positions of Pain News Network.

The Unnerving Impact of COVID-19 on the Chronically Ill

By Pat Akerberg, Guest Columnist

Let’s face it. Living with a debilitating chronic health condition and a global pandemic at the same time are a “double whammy” with unthinkable impacts. Trigeminal Neuralgia (TN) happens to be my medical vulnerability. Yours may be a different one putting you at risk.

Known as the “suicide disease,” TN is an excruciating facial pain disorder that is considered the worst pain known to medicine. With a tenuous prognosis, TN significantly compromises life quality and puts its sufferers at risk both medically and psychologically.

Covid-19 needs no introduction as it continues to hold a worldwide population hostage -- isolating, living in fear and starved for hopeful news.  Add living with a serious co-morbidity like mine or yours, and the stress of getting hit with the double whammy increases.

Destabilizing factors shared by TN (or your condition) and Covid-19 are several. TN patients, already vulnerable with compromised neurological and immune systems, have to be hyper-vigilant now about staying safe to avoid the scary risks Covid-19 can bring. The effects of this fear, stress and worry loom large when considering the possibility of our chronic conditions being compounded by Covid-19. 

“In my field, we have conducted a lot of work to look at what predicts who gets colds and different forms of respiratory illnesses, and who is more susceptible to getting sick,” says Christopher Fagundes, PhD, a psychological scientist at Rice University.  

“We’ve found that stress, loneliness and lack of sleep are three factors that can seriously compromise aspects of the immune system that make people more susceptible to viruses if exposed. Also, stress, loneliness and disrupted sleep promote other aspects of the immune system responsible for the production of proinflammatory cytokines to over-respond. Elevated proinflammatory cytokine production can generate sustained upper respiratory infection symptoms.”

With intractable pain, sensitized nervous systems are already compromised. Add prolonged anxiety and exhaustion to the isolation, loneliness and a loss of physical connections necessitated by social distancing, and the ground is fertile for hopelessness and depression to take root.

A form of medical neglect is taking shape too, making it harder to cope as important medical, ER or clinic visits and medication refills have been pushed aside by Covid-19.  Yet they remain urgent needs for those afflicted with ongoing conditions.

Caring families and friends are rendered helpless as they witness previously healthy, vibrant loved ones reduced by the chronic conditions that take them over.  Like Covid-19, the life altering stories of TN sufferers are hard to take in. Listen to what some are dealing with:

“I’ve had two surgeries for TN after medications were unable to stop the pain… recently, after 15 years, the pain has come roaring back!  The stress in my life caused by my inability to work during the Covid-19 isolation has triggered the TN pain… it has made it enormously worse… and I can’t even reach my doctor… sometimes I feel like giving up.”

“Things are ridiculously difficult right now. Everyone in our family is feeling it.  My husband and I feel defeated and my Mom feels stressed and overwhelmed. The kids are struggling, flip-flopping between difficult emotions. For nearly 5 years we have been telling ourselves that things will get better as we do our best to live in ‘survival mode.’ But we feel extreme failure as we are starting to see the damage survival mode has done. We aren't sure how to fix it or keep this ship afloat. It feels like we’re the Titanic after it hit the iceberg.” 

“When newly diagnosed, TN patients and their loved ones are worried sick when they discover its’ reputation as the suicide disease.  In searching for answers, they come up against gut punches instead – the discouraging lack of research historically, the poor performance of medications, and/or the disappointing impermanence or complications of risky treatments. Yet, the drive for relief is so great, they’re forced to roll the dice and choose among shortfalls.  Familiar with horror stories of what can go wrong, like a recurring nightmare they are haunted by what might happen to them, fearing their capacity to endure.” 

While we may all share the threat of this pandemic together, the truth is those of us deemed “at risk” can also feel alone as we cope with our personal medical plights. To counter such destabilizing vulnerabilities, we must recognize that the potential for this double whammy fuels an urgent need for HOPE and concrete progress now that can change lives for the better.

Hope and progress – in the forms of more research funding, lasting treatments, promising prognoses and encouraging scientific breakthroughs – can’t come soon enough! 

Pat Akerberg is a member of the TNA Facial Pain Association and serves as a moderator for their online support forum. She is also a supporter of the Trigeminal Neuralgia Research Foundation.

Florence Nightingale Was Born 200 Years Ago and Is More Important Than Ever

By Roger Chriss, PNN Columnist

This week marks the 200th anniversary of Florence Nightingale’s birth. She was born on May 12, 1820, and is considered the founder of modern nursing and an innovator in the use of medical statistics.

Named for the city of Florence, Italy, where she was born, Nightingale grew up in a wealthy British family and demonstrated a gift for mathematics. She traveled extensively throughout Europe during her youth and announced her decision to enter the nursing field when she was 24, despite the opposition of her family and the restrictive social mores of Victorian England.

Nightingale made fundamental contributions to nursing and biostatistics during the Crimean War, during which she managed and trained nurses, and organized care for British soldiers.

In 1854, she identified poor care for the wounded at Selimiye Barracks in what is now Istanbul due to overworked and under-equipped medical staff and official indifference. Medicine was limited, hygiene neglected and soldiers suffered as a result, she found.

Nightingale collected meticulous records of patient outcomes in the military field hospital she managed. Then she summarized this information in a form of pie chart now known as the polar area diagram, clearly showing the benefits of improved patient care.

FLORENCE NIGHTINGALE

This visual representation of statistics was much more readily understood than conventional columns of numbers and helped convince civil servants and even members of Parliament that her findings were significant.

Nightingale applied the same methodology to a study of sanitation in rural India, playing a key role in improving medical care and public health services in that country. She found that bad drainage, contaminated water, overcrowding and poor ventilation were important risk factors in the spread of disease. Her work ultimately helped reduce mortality among British soldiers stationed in India from 69 to 18 per 1,000.

But Nightingale is best known for her role in the foundation of modern nursing. She led by example, with a commitment to patient care and medical administration.

She developed the first official nurse training program, the Nightingale School for Nurses, which opened in 1860. It is now known as the Florence Nightingale Faculty of Nursing and Midwifery at King's College London.

Her work is also remembered in the Florence Nightingale Medal for outstanding service in nursing, among many other honors in her name.

Nightingale’s work in public health and record keeping dovetailed with the first epidemiological success in Britain. In the summer of 1854, English physician John Snow showed that a cholera outbreak could be traced to the contaminated Broad Street Pump, which he stopped by simply removing the handle of the pump so people couldn’t use it anymore.

Snow’s methods involved what we would now call outbreak maps and contact tracing. And his findings inspired improvements in water and waste systems in London and around the world.

NIghtingale’s 1859 book, “Notes on Nursing: What It Is, and What It Is Not,” is a seminal text about the nature and practice of nursing. In it she wrote: “The very first requirement in a hospital is that it should do the sick no harm.”

Today, amid the global coronavirus pandemic, the dedication of nurses and the importance of medical statistics cannot be understated. Nurses are falling sick and dying at alarming rates, in part because institutional leadership is failing them. One-third of Covid-19 deaths in the U.S. are occurring among nursing home residents and staff.

Nightingale’s example needs to be recognized and followed. Her bicentennial provides a timely opportunity to emulate her lifelong dedication to medical care and public health.  

Roger Chriss lives with Ehlers Danlos syndrome and is a proud member of the Ehlers-Danlos Society. Roger is a technical consultant in Washington state, where he specializes in mathematics and research. 

Arachnoiditis Nearly Destroyed My Life

By Robert Perry, Guest Columnist

I was a pipe welder when I first hurt my back in 1992. The doctor ordered a myelogram imaging test on my back with a chemical dye. It was one of the most painful tests I ever had. After the test the doctor told me I had to learn to live with my pain. At that time, I was only 27 years old. The doctor told me I might be able to work for another 15 years.

He was right about that. In 2008, I was a project manager at ATT and started losing the ability to use my legs. One day I couldn’t get out of bed for about 3 hours because I was having so much pain in my legs and lower back. I was screaming from the pain and the muscles spasms were so bad it made me cry.

I started falling at work and hurting so bad it was unreal, so they did an MRI on me and found I had Arachnoiditis. Since then my life has been a hard road. It’s unreal how many doctors don’t know anything about this disease. One doctor did 5 epidural steroid injections on me and made it worse.

Another doctor put a spinal cord stimulator temporarily in my back to see if it would help, but he accidentally punctured my spine and left an air bubble. I went home and late that night got a terrible headache that felt like it was killing me. My ex-wife and kids took me to the emergency room. I was about to die from the bubble in my body.

They finally found the bubble in my body by cat scan. The only way you can get a bubble out is to remain really calm, so they started giving me a strong painkiller in an IV drip.  But the nurse wasn’t paying attention and I overdosed. I knew I was dying and thank God that a person came in to clean my room and I got her to go get help.

ROBERT PERRY

I had her call my family on my cell phone. I was able to tell my family goodbye. Right after that, I lost consciousness. I finally woke up 8 hours later and the doctor was waiting on me to ask me things to see if I had any brain damage. The first thing I asked was for my dad, but I couldn’t remember that my dad was dead until they told me.

I have been through a lot because of Arachnoiditis. I lost my family and now I am married to a wonderful lady who knows I am a very sick person.  This disease is the one of the most painful. I have to take two shots a month and I am on a lot of meds. I have a good doctor now who put me on a fentanyl pain patch and my life has been a lot better.

I am a preacher and have a lot of faith. One night at church I was in so much pain the congregation was about to take me to the hospital. And I told God that night either heal me or take me. They prayed over me and I walked out of the church without any pain or my cane.

That’s was 5 years ago and I am still doing a lot better and able to live now. The doctors can’t help, but God can. I am very thankful for that night in prayer.

Arachnoiditis nearly destroyed my life. I hope they one day find a cure for this terrible disease. Before God touched me that night, I was about ready to take my life because of the pain.

Robert Perry lives in Kentucky.

PNN invites other readers to share their stories with us. Send them to editor@painnewsnetwork.org.

FDA's Stem Cell Reformation Must Go Beyond COVID-19

By A. Rahman Ford, PNN Columnist

The COVID-19 crisis has been a catalyst for new regulatory flexibility at the U.S. Food and Drug Administration. The FDA is pushing aggressively to develop new vaccines and treatments for coronavirus, including dozens of clinical trials of stem cell therapies on critically ill patients.

Mesoblast recently dosed its first patients on ventilators in a 300-patient trial using its Remestemcel-L stem cell product to treat acute respiratory distress syndrome (ARDS). Pluristem Therapeutics is using placenta-derived stem cells in another trial, while The Cure Alliance is using umbilical-cord derived stem cells. GIOSTAR has a trial approved for its mesenchymal stem cells under the FDA’s “compassionate use” program. And Athersys has begun a large trial using stem cells derived from bone marrow on patients with moderate to severe ARDS.

A stem cell reformation of sorts is underway at the FDA due to the coronavirus pandemic. But what about the chronic pain crisis? About 50 million American lives with chronic pain, as opposed to 1.3 million confirmed cases of coronavirus in the U.S. to date.

The reformation is not only the result of COVID-19, but due to the simmering pressure of the American people, who have long demanded greater democracy and autonomy in medical treatment. The voice of the people and the virulence of the pandemic have merged into a veritable stem cell Martin Luther, the German monk who rejected the teachings of the Catholic Church during the Protestant Reformation.

Like those told to wait for the promise of stem cell therapy to materialize while being inundated with propaganda about “unproven” cellular treatments, Christians in the Midieval era were told to wait for a salvation controlled by an entrenched religious establishment -- when the salvation they sought was always right inside of them. 

One aspect of our current medical crisis is not new. Americans suffering with intractable chronic pain have endured perpetual crisis for a seeming eternity, waiting for the FDA to abandon its rigid, doctrinaire, one-size-fits-all approach to medical care in favor of more flexible, forward-thinking and tailored treatments.

The COVID-19 crisis — and Americans' consequent demand for solutions — has forced the FDA's hand. This demand compelled the FDA to reconsider its bureaucratic veneration of regulatory relics that denied the revolutionary novelty of stem cells.

The FDA deserves some credit for finally acknowledging the need for exploration and innovation in its clinical trial procedures. But now the agency must recognize that chronic pain - like COVID-19 - is a national medical crisis that necessitates a similar creative solution.

Stem cell regulatory innovation must not end with coronavirus. In fact, it must continue and accelerate. Yes, the current progress is heartening. However, more must be done. And needs to be done immediately. The chronic pain crisis demands it.

The FDA's current push for stem cell innovation must proceed beyond the therapeutic necessity of coronavirus. The agency needs to reform its restrictions on the use of our own stem cells for treating arthritis, neuropathy, degenerative disc disease and other chronic pain conditions.

This reform must no longer be the subject of directionless academic debate or an issue for consideration by medical "ethicists" and self-proclaimed protectors of the common good. The time for debate and delay has ended. The time for decisive action has arrived.  

At the core of the matter are the cries of millions of Americans in a critical crisis of pain that existed well before the face masks, latex gloves, hand-washing, social distancing and trillions of dollars in federal appropriations that COVID-19 has spawned.

To the FDA and Commissioner Stephen Hahn, your effort in pursuing stem cell therapy for COVID-19 treatment has not gone unnoticed. Now it is time to relax FDA regulations on the use of our own stem cells. Devolve regulatory authority to the states and their oversight, and let physicians and patients decide when stem cell therapies are appropriate.

This is the next logical step in the FDA's reformation. It is a necessary step. It is the right step.

A. Rahman Ford, PhD, is a lawyer and research professional. He is a graduate of Rutgers University and the Howard University School of Law, where he served as Editor-in-Chief of the Howard Law Journal. Rahman lives with chronic inflammation in his digestive tract and is unable to eat solid food. He has received stem cell treatment in China. 

The opinions expressed in this column are those of the author alone and do not inherently reflect the views, opinions and/or positions of Pain News Network.

Chronic Pain and COVID-19: Why Is Treating One Disease More Noble Than the Other?

By Dr. Lynn Webster, PNN Columnist

During the coronavirus pandemic, our frontline healthcare providers have put their lives on the line, and many have paid a price. Their sacrifice is quintessentially noble, and we feel boundless respect and gratitude for their work.

Similar compassion is felt for COVID-19 patients. We are moved by the tireless efforts made to provide them with proper care, medication and life-supporting equipment.

This outpouring has led me, as a pain and addiction medicine physician, to reflect: When is healthcare noble? And why is some healthcare noble and other healthcare suspect?

There is a stark, bittersweet disparity between the esteem and appreciation we rightly bestow on COVID-19 frontline providers and the suspicion we direct toward chronic pain physicians.

Our frontline heroes in the coronavirus crisis -- regardless of patient outcomes -- are viewed as inherently noble and courageous. Conversely, those who treat people with chronic pain -- especially in cases with an adverse outcomes -- are often threatened with harsh judgment, loss of medical licenses and even incarceration.

Recently passed federal legislation provides “broad immunity” from legal liability to providers treating COVID-19 patients. Pain physicians have no such immunity.

This disparity is also mirrored in patient treatment, sometimes involving the same drug. There is a shortage of injectable fentanyl and other painkillers ventilated coronavirus patients need. The Drug Enforcement Administration recently increased the production quota for those drugs so manufacturers could produce more of them. But DEA-ordered cutbacks in the production of other opioids remain in place.

People in pain -- whether they have the coronavirus or not -- deserve the same effective and humane treatment.

As a pain physician, I have watched people with chronic conditions who are forced to live with undertreated pain for years. I have seen them fight to get through each day as the medications they need are tapered due to governmental regulations and cultural biases, rather than their physicians' decisions. I have observed their struggles with desperate options, including suicide, in the face of daily, oppressive and almost unimaginable pain.

Even as I recognize the heroism of the frontline practitioners caring for people with COVID-19, I have to wonder: How did patients with chronic pain end up on the wrong side of the empathy divide?

Pain patients feel this empathy inequity. It's not uncommon for some healthcare providers to treat them like exiles from society, as drug-seekers, malingerers or even criminals. But these "criminals" are people who have a disease that saddles them with long-term pain. Does their suffering matter less than coronavirus patients’ pain?

How must they feel about society’s outpouring of love for COVID-19 fighters and victims compared to the suspicion, derision and slander they receive?

An Opportunity for Reflection

I submit that the heroic and selfless medical response to those afflicted with COVID-19 should prompt valuable reflection by all providers on empathy and equitable treatment for all patients.

What is it about certain medical conditions that results in unprecedented concern, a willingness to muster all resources, and an outpouring of selflessness from practitioners and the public alike? Why are healthcare professionals willing to risk their lives for coronavirus patients, but not their reputations to treat chronic pain?

Some may argue that it is the immediacy of the threat and risk of death that makes the difference. But that’s a false argument. All pain is immediate and, despite what is commonly thought, people with severe chronic pain have dramatically shortened life expectancy. 

Providers on the frontlines of the lengthier, more widespread and complex pain crisis are as noble as those fighting the current pandemic. They often take on patients that others don’t want to treat. They show open-mindedness, concern and great courage in risking the respect of their peers, running afoul of misinformed authorities, or being persecuted by misguided legislation. They put aside their professional well-being to serve a seriously oppressed and underserved population.

We need to find a way to professionally restore belief in the nobility of those providers who may not cure patients, but who do offer comfort and relief. These are professionals who are willing -- often for months and years -- to fight wearying and risky battles for their patients.

If such battles received the respect they deserved, there would be nothing bittersweet about watching all members of the same profession going above and beyond the call of duty for all.

Lynn R. Webster, MD, is a vice president of scientific affairs for PRA Health Sciences and consults with the pharmaceutical industry. He is author of the award-winning book, “The Painful Truth,” and co-producer of the documentary, “It Hurts Until You Die.” You can find Lynn on Twitter: @LynnRWebsterMD.

The opinions expressed in this column are those of the author alone and do not inherently reflect the views, opinions and/or positions of Pain News Network.

The Other Side of Cannabis

By Madora Pennington, PNN Columnist

I knew from my friend Nick’s Facebook feed that he was a cannabis enthusiast. His posts preached how it cures pretty much everything and will lead us to world peace.

Nick never tired of encouraging me to try it for my pain from Ehlers-Danlos Syndrome, even as I explained repeatedly that since my mother was psychotic, I avoid all drugs which may cause psychosis. Theoretically, I am at higher risk for that adverse reaction.

Psychosis is a disconnection from reality. A person may have delusions, hallucinations, talk incoherently and experience agitation. Since the 1970s, researchers have been investigating whether cannabis can trigger a psychotic break or full-blown schizophrenia. Daily users of highly potent cannabis are five times more likely to develop psychosis. The risk comes not only from genetic factors, but also from early-life neglect or abuse and even being born in the winter.

Having a rare and complicated medical condition, I get a lot of advice. I took Nick’s insistence I go on cannabis as kindness, as I take all unsolicited health tips. Our social media friendship grew. When my husband and I took a trip to his part of the world, he invited us to stay with him.

Nick picked us up at the train station in the English countryside looking like a dashing movie star. Slim and trim in a crisp Oxford shirt and Ray Bans, spryly maneuvering our luggage, he was still attractive in his 70s. Speaking English like Prince Charles, he confessed, “I am actually a cannabis farmer. I expect no trouble from the local police, but would you prefer to get a hotel room in town?”

My husband and I once risked our lives in the back alleys of Hong Kong to get me a fake Hermes bag. We did not need to consult with each other. We opt for adventure. I would not miss my chance to live a Jane Austen fantasy.

We ate off Nick’s three centuries-old family silver, the forks worn down from hundreds of years of scooting food across the plate. We sat beneath the Regency era portraits of his ancestors. Nick had a room devoted to his cannabis crop, growing fast underneath sun simulating lamps. The odor from the plants permeated his entire country home.

In real life, just as on Facebook, Nick’s favorite subject was the virtues of cannabis. He had been using it since he was a young man. Decades ago, he had spent a couple of years in prison for distribution. Recently his wife had left him over his devotion to marijuana. It was clear from Nick’s stories and life choices that cannabis had created tremendous tension with his family.

We talked of him coming to stay with us in Los Angeles, how we could all go to San Francisco to visit the Haight, as Nick was a genuine 1960s hippie. But leaving home to travel was a problem for him. When he does, he has to ask a friend to tend to his plants, which also means asking the friend to break the law.

Our days with Nick at his charming cottage were governed by his need to partake. Our visits to local sites were cut short, so he could be done driving and functioning for the day, and get home to get high. He did not seem to enjoy the excursions and seemed overwhelmed by being out and about, his anxiety growing, urging us to wrap up and get back home.

Cannabis Side Effects

Like Nick, many people are certain that marijuana helps them get by. On it, life is tolerable and pleasant. Anxiety is calmed. They are out of pain and able to sleep. But are they really benefiting?

At first, marijuana has a calming effect, but over time it negatively changes the way the brain works, causing anxiety, depression and impaired social functioning. With regular use, memory, learning, attention, decision-making, coordination, emotions, and reaction time are impaired. Heavy cannabis use lowers IQ. 

This damage can persist, even after use stops. Teenage users are more likely to experience anxiety, depression and suicidality in young adulthood. According to the CDC, about 1 in 10 marijuana users will become addicted. For people who begin using younger than age 18, 1 in 6 become addicted.

As is the case with other mood-altering substances, cannabis withdrawal symptoms — which include irritability, nervousness, anxiety, depression, insomnia, loss of appetite, abdominal pain, shakiness, sweating, fever, chills and headache — provokes the desire to use.

If someone is using cannabis to escape emotional distress, they never get the chance to deal with underlying problems. Psychiatrist Dr. David Puder recommends to his patients on cannabis that they stop in order to benefit from therapy.

“When they are off of marijuana, they have the ability to be present and really process what they will need to process in therapy in order to get over anxiety and depression,” Puder says, noting that users will often experience a flood of emotions and memories once they stop.

Medical marijuana has been approved for chronic pain and over 50 other health conditions by various states. Whether it actually helps with pain is uncertain. The U.S. Surgeon General warns the potency of marijuana has changed over time and what is available today is much stronger than previous versions. Higher doses of THC (the psychoactive chemical in cannabis) are more likely to produce anxiety, agitation, paranoia and psychosis. Consumers are not adequately warned about these potential harms.

House Guests

Our friend Nick was sure his marijuana use was his choice and that he was not addicted. He insisted my husband and I get high with him.

What is a polite house guest to do? Go along, of course, although we prefer whiskey and a steak. Nick promised we would love it, and that we were free to go upstairs and have sex and open up about anything. We giggled awkwardly. I ingested the smallest possible dose.

Nick then got higher than we had seen him during our entire visit, wolfing down his dinner in minutes. Then, after promising we’d have a tremendous evening of emotional openness and transcendent sharing, he burst into tears recounting how he was the victim of violence in his youth.

I felt for him, it was a horrifying event. Was this unresolved trauma the cause of a lifetime of drug use, denial and self-isolation? We had to wonder. It was truly awkward and uncomfortable, but Nick didn’t seem to remember his outburst. When we returned home, he continued to hound me to take up cannabis.

Madora Pennington writes about Ehlers-Danlos Syndrome and life after disability at LessFlexible.com. Her work has also been featured in the Los Angeles Times.

The opinions expressed in this column are those of the author alone and do not inherently reflect the views, opinions and/or positions of Pain News Network.

How to Cope with Anxiety During the Pandemic

By Ann Marie Gaudon, PNN Columnist

Some folks do not cope well when anxiety comes for a visit. They don’t consider anxiety a normal emotion or call to action, but rather as something bad that must be gotten rid of.

There is no fault here, we live in a “feel good” society bombarded by messages that if we feel distress of any kind, we must do or take or buy something to get rid of it.

I explained how emotions contain a message in my column about loneliness during the coronavirus lockdown. The message is that you must make an effort to end your loneliness by changing your behaviour. Expand your world. Talk with people, laugh with people and cry with people. Find ways to interact.

Anxiety is another emotion. The research is very clear. If you try to deny, dismiss, avoid or overreact to anxiety, it is very likely to get worse. This in turn, can wreak havoc on your overall health.

Consider for a moment that you have a “struggle switch” for anxiety (or any emotion). If you overreact to anxiety or try to avoid it, your struggle switch is flipped “ON.” 

The message during a pandemic is loud and clear: There is something serious going on and we must take action to protect ourselves and others. That anxious feeling you have is trying to protect you, not harm you. It’s a very old evolutionary response. Very good copers have learned how to make peace with their anxiety, realizing it is there in an attempt to keep them safe.

Here are ways to flip that struggle switch to “OFF.”

Pay attention on purpose. Slow down, notice and name what you are feeling. For example, “I am feeling anxious. My heart is pounding fast, and my stomach has knots in it.”

Let these bodily sensations be just as they are, without judging or evaluating them. Just breathe, slow down, and let go of the urge to do anything at all with this feeling of anxiety.

Again, this is a normal response to an abnormal situation and your body is wise to this, so just be still and observe. If you need help with this, there are endless mindfulness activities online that allow you to have your experience without trying to escape from it. Here is one you can try.

Make an intention. Ask yourself, “What will I do with this feeling of anxiety? My mind sees this as something that makes me weak and vulnerable, however I choose not to get hooked by this. I accept this anxiety as mine. What will I do with it now that it is here?”

How you respond will be clear if you remember what is important to you. Even in a world that is fearful, you can be in touch with your values. Ask yourself, “What do I want to stand for in the face of this pandemic?”

You can hold this anxiety gently, as you would a nervous puppy, and change your behaviour -- with puppy in tow.

Expand your experience. Rather than running away from anxiety, learn from it. Anxiety tells us that we are alive and there is work to be done to protect ourselves. Even in times of fear and uncertainty, there is opportunity. Necessary life changes are not all negative. You can use this anxiety as a wake up call.

In addition to protective measures such as social distancing, are there other behaviours you can take that reflect how you want to be in this world? Can you commit to actions that improve the way you treat yourself and others?

Infectious disease, like any life stressor, presents a major challenge to our coping skills. I speak about this on my website. Binge eating and zoning out on Netflix will not improve your coping skills. They are just ways to try to escape from anxiety. Hoarding toilet paper or panic buying will also not accomplish this. They are signs of over-reacting to anxiety.

Instead, focus on what you can do in this moment. Worry is normal and natural, and can help us to eliminate threat. However, worry cannot get all of our troubles to take a hike. Once we have taken our protective actions, we can focus on how to make our lives better and to nurture and enjoy our relationships and all that is important to us.

Once that struggle switch is turned “OFF,” you will see that you can commit to your values – even with anxiety coming along for the ride. 

Ann Marie Gaudon is a registered social worker and psychotherapist in the Waterloo region of Ontario, Canada with a specialty in chronic pain management.  She has been a chronic pain patient for over 30 years and works part-time as her health allows. For more information about Ann Marie's counseling services, visit her website.